Achievements

  • Achievements:
  • 25.03.13 - Started Action Plan;
  • 24.03.13 - Baked two puddings for guests & SBC;
  • 23.03.13 - Figured out how to do this (not well but it works)

Sunday 31 March 2013

Testing Times

Surrounded by noisy, demanding family does not help me put my new rule in to practise. Had lots of valerian and diazepam. But still so stressed and anxious, toes curling within my slipper boots with anxiety.

"I don't know how you can drink that foul smelling stuff" ie my valerian water, "I'd be scratching at the walls if I didn't". Only my dad seems to understand & identify with me.

Still sitting at my parents' with the whole clan so will leave this for now. Hopefully I'll be able to add more later, in a calmer state.

J x 

Ok, so I'm home now and having just read the above realise how selfish, disrespectful & down right rude I sound.

I have the best family in the world, but they are loud, they do interupt me, they don't always listen but they are so supportive (sometime a little too supportive where their anxiety makes me more anxious - hee hee).

Glad to have my feet up at the flat. Had a POTS turn, having been freezing earlier through the day, I suddenly felt faint, when clammy and pale. A lie down, a salty snack and a pint of water later I was ok, tired but ok. Hence now being in bed.

I really do have an amazing family but when so many people get together it can be so tiring but they all appreciate this.

I love my family to bits.

J x

Saturday 30 March 2013

Eat That Frog

My anxiety levels were high today but I had to go out to the post & really wanted to prepare things for Easter. What to do? What to do? The anxiety and walking to the postbox would use a lot of spoons. The baking would too!

After a conversation with my sister she had told me she had made cakes (although she admitted they may not taste as nice as mine). My mum also had a pudding in for Easter so I thought my spoons should go on going to the postbox, especially with there being no collection on Monday. 

My sister told me to just do it and eat that frog:

An old saying is that "If the first thing you do each morning is to eat a live frog, you can go through the day with the satisfaction of knowing that it is probably the worst thing that is going to happen to you all day long!" Your "FROG" is the one thing you are most likely to keep putting off if you don't do something about it now! It is also the one task that can have the greatest positive impact on your life if you do it now.

The frog went down quite nicely with a diazepam. I then decided, as it had used a lot of spoons, there were already puddings and my mum caters for the 5000 I decided I'd have a day of rest and sod Easter. I can always make Hot Cross Buns another day, who says they have to be for Easter alone? I also need the spoons to put up with the rabble tomorrow! And hoping to do a Creme Egg bake a long on Monday. I made a few chocs the other day so people can have those tomorrow but I'm sure they won't mind.

I'm actually quite proud of myself that I have put this new rule into action and instead of "everyone else must come first otherwise I am useless & worthless", I have "tried to put others first but in this case it was not possible and I will provide pudding/cakes for the next occasion". It's a shame as it is something I love doing but my spoons are vital, especially after having fewer after my recent migraine.

I hope all my fellow dysautonomia/chronic illness/MH people are taking it easy this weekend too. Just because it's a longer weekend doesn't mean you can do more.

Give yourself a break.

J xxx

Friday 29 March 2013

Migraines Suck!

Sorry I've been away for a few days & that my posts have focussed mainly on the anxiety & depression symptoms. For the past 2 days I have had the migraine from hell. So again this will be a short post as I don't want to get a headache from looking at the screen for too long.

Basically I think the snow, stress, barometric pressure change brought it on, plus the tiredness after Tuesday!

My senses were all heightenend, I couldn't keep any food down, I was freezing, convulsing, it was horrific, especially at 5am lying passed out on the bathroom floor. Fortunately I had an appointment booked with my GP that evening, my parents had to take me as I couldn't walk without support. My wonderful dad then drove round for an hour trying to find a pharmacy that was open (it was 7.15pm) and had the nasal sumatriptan in.

Thank god it worked, I'm shattered and have a headache but it is such a relief that the other symptoms have gone.

I am still typing one armed by the way! Yeah, POTS is not giving me a break lately!

Anyway, trying to keep positive!

Will be back to regular blogging from tomorrow...I hope!

Once again thanks for reading!
J x

Tuesday 26 March 2013

Am I Here?

Day from hell, can't go into details right now as too raw but sitting here, checking Twitter just to keep my mind going, boyfriend sat playing God of War 3 which seems to be violence & porn. I know people aren't mind readers but seriously my eyes are full of tears if he can take his eyes off the naked cyber breasts. Feel invisible, really not helping my worth.

Will fill you in more about my day tomorrow.

Thank you for reading, just having someone "listening" to my self indulgent crap means more than you know!

J x

Monday 25 March 2013

The Ups & Downs

Why on Earth do I lurch from feeling haapy and optimistic to anxiouspanicky & edgy or even depressed & hopeless. "That's just depression they say". I've always wanted to know more about everything and never accepted "it just is" as an answer. I'm curious. I read just as much non-fiction as fiction. How do things work. What makes one mind work different to another? I've read the textbooks, I know the academic answers but it still just doesn't make sense. I want to know more!

In the meantime I'll keep reading, keep working on my mood journal things, CCI workbooks incase I can some day figure out a pattern. part of me thinks I won't get better until I have all the answers...we will see.

Sunday 24 March 2013

Busy Busy Busy

I have been busy since 8am & keeping at it - have guests coming at 6.30pm!

This will be a quick blog, I may be able to add to it later but there are cakes to be made and me to be made presentable in some shape - hard work I know!

I've found that as soon as I get anxious the kitchen is my saviour, not only am I making the pudding for the visit (it was being made for Sunday Baking Club anyway) but also I have made some choc orange cupcakes! Calmed me down! 

Maybe more later...

Saturday 23 March 2013

Inspirational Lady

http://youtu.be/ANb8E2o9OdU

Please, please watch this video. Ilona is an amazing individual who campaigns against eating disorders of all kinds, not just the "obvious" ones portrayed by the media.

At school I was told I was stupid. I was compared to my sister and my friends who are now mainly doctors, solicitors, barristers, etc. But being told that day in day out by teachers really got to me, gave me low self esteem and this horrible recurring depression and anxiety cycle.

Anyway, one way that I thought I could be as good was to stay skinny, we were taught about Victorian waist sizes in history when we were about 14 and as I was "a late bloomer" I was the only one in the class who had a Victorian sized waist. Ah hah - this could be something I could be better at.

So I skipped breakfast telling my mum I'd get something at school. throw my lunch away or not bother going and then push my dinner around my plate. In my head I was telling myself I just wasn't hungry, didn't want to eat. Part of it was also my depression, not feeling worthy of eating. By the time I left home for Uni I was roughly 6stone and 5'4", I was slim but no one other than my mum commented on it. I got annoyed at her, I wasn't anorexic, I just didn't want to eat, I didn't feel like eating, anorexics have to go to hospital and won't eat anything at all, I ate something every day.

It was only on reading Ilona's article in April's Marie Claire that it clicked, I did have an ED, it was part of my depression but it was still an ED. This month I apologised to my mum and she said she knew, she worried and was pleased I had finally realised it.

I still have moments where I think I should lose weight, but I know I shouldn't I'm healthy, I have a good BMI and as my boyfriend tells me he loves my curves and I love being able to wear dresses and fill them rather than having bones sticking over the top.

Thank you Ilona!

J

Positivity

Firstly let me apologise that so many of my blogs have been focussing on depression rather than my POTS but it has really taken over lately and I've been lucky enough because of the depression that I've not been going out much to catch germs, get tired and have spent time resting.

Again though things got low last night, I just felt like everything was pointless & I was driving people away. I keep getting new followers & then losing them on Twitter. I often wonder why people start following me and then what I do to drive them away, it's an open profile so why don't they just check it out first? Maybe it's because my Twitter is as diverse as I am, I love reading, writing, baking, I talk about my POTS, my depression, my anxiety, my dwindling faith in any hope of being able to survive and my frustration in politics. Maybe some people are just interested in one thing or another & give up when I talk about something I'm not interested in. I'm not tracking who is/isn't following me - I just have an urge to know why. Also maybe some may like my positive tweets and others may just like seeing someone moody. Who knows? As my therapist has said I can't know what people are thinking. But I still have this self esteem issue as to why? Anyway, as long as those I hold close stick with me then I don't really mind!

Anyway back to the POSITIVITY theme! 

In addition to my 15 minute worry time, I'm going to have a 15 minute creative planning time (this may also include a to do list-but never shopping lists or cleaning lists) it's all about fun, positive things to move my life forward. I can't sit & cry every night anymore.

So a few of the things I have to do are:
Keep up with this blog & hopefully make it a bit more user friendly.
Keep writing in general.
Get back on my baking blog, baking email, baking twitter, etc.
Keep up with my mood journal.
Add to my positive book.
Sort out the many bookmarked pages on my computer.
Sort out the favourites on Twitter, which I say I'll read when I have more time!
Sort out my iPod!
There are more but I won't bore you more than I already have! I'm also going to make sure I don't try to over do things, if I don't do all this today (and I won't!) it doesn't make me bad, it makes me human and will save me some spoons for baking tomorrow! I'll do what I can in my own time and be pleased with whatever I have achieved - I started the month using #moosemarch but things got bad and I abandoned all sense of my own achievement.

Instead I will have an achievement list on here - if I can figure out how to have a separate list to just the posts. I do wish I was better with technology - although it is worrying that my mum, dad, their friends, my boyfriend and sister rely on me to help them with tech :-S.

Please keep your eyes peeled for any new updates.

Thanks
J

Friday 22 March 2013

WTF is Schema?

Today has not been the best of days. A couple of misunderstandings. Trying to get my mum with her sore throat & still bleeding nose to stop running around, stop talking, sit down & give the phone to my dad. Therapy was weird. My therapist has been fantastic, he has given me so many tips and I was feeling like I was getting so far and now although I have a few ways to handle my anxiety and depression I've still regressed.

Thanks to the NHS we can only have a maximum of 18 sessions and we are very close to the end of these and acknowledges I need more help, so he has recommended I speak to one of his colleagues on Tuesday and then have a kind of farewell round up with him after. I will miss him, he had good tips, was a great support & we really got on.

The idea of schema scares me slightly, all I know is that it's an amalgamation of different therapies and group sessions were mentioned. I am TERRIFIED of group. I had bad experiences of it when I was in Leeds, I am scared of other people judging me, thinking what's she got to be depressed about, etc?

Even thinking about it makes me want to cry. I have to try it. I want to be better. I hate feeling like this and I know it doesn't help my POTS in the slightest. The more depressed and stressed I get the more POTSy I become, the more POTSy I become, the more anxious I become and then the more depressed I become. It is a horrible cycle where I'm afraid to leave the flat, am so dependant on my parents (to a stupid level - I'm 28 FFS), my friends are all married with kids and I am just going backwards.

My arm still hurts, my resting heart rate after lying in bed for 5 hours was 106 bpm which is the lowest it has been in ages (so that's one thing) but when I get up and move it goes beyond the crazy to the point where I am resting in the hall between my bedroom and the front room. I just feel so tired. I feel guilty complaining as I know there are so many other POTS/dysautonomia patients out there who are in worse conditions and have families to look after too, and I seriously take my hat off to them.

My brain does not shut up.

I want to achieve so much. I've made so many lists of things I want to do and achieve and I'm never going to do them.

God, this was all self-indulgent drivel. If anyone has bothered to read this, I'm sorry for wasting your time!

J

Just a quick one...

Please visit http://SU4MH.com and join those who are Standing Up for Mental Health.




Thursday 21 March 2013

Who'd know postboxes could be so traumatic?

I woke up today with energy (a great and rare feeling) so I caught up on some TV and texted my mum ready for her sinus operation.

The energy stayed with me so I thought I'd get some fresh air before the snow comes tomorrow. So Chris & I set off to post two birthday cards. The postbox is less than 0.3 miles away, I used to be able to walk miles, I did Duke of Edinburgh (well most of it until part of my lung collapsed at night in a tent in the middle of a field). 

Chris being the one with the bad back is usually the slow one but today it was me, the cold wind prevented me from breathing properly so by the time I got to the postbox I was exhausted. If my dad hadn't been picking my mum up from the hospital I would have been tempted to call him to rescue me, but Chris supported me the 0.3 miles back. Just writing this sounds so stupid! But it really affects me. I think my anxiety just makes things so much worse too as I panic it makes it hard to breathe, my heart races, my bp drops. I stumbled back up the stairs and collapsed on the couch. So lucky to have Chris there to look after me, make my lunch, fetch my tablets, answer the phone, walk my dizzy, wobbly body to the bedroom so I could speak to my dad about my mum's op.

I'm relieved she's doing ok, but her nose is still bleeding nearly 7 hours later :-S I wish I was there to look after her as my dad isn't the best with blood, sick, etc. I reassured her she would be ok and gave her advice - being the nose bleed expert in the family - thanks Ehlers Danlos Syndrome! But she seems in good spirits from the texts she has sent.

I am now resting in bed, waiting until my next dose of painkillers at 9pm. I really need my arm sorting if I'm going to stand a chance of getting any further with my writing. Or indeed write longer blogs, add pics and pick up my baking blog again!

Eheu. Not looking forward to the snow tomorrow. Why does it always snow on my CBT days? Curious fact.

Hopefully I'll have an update again tomorrow, if I'm not worn out!

J

Wednesday 20 March 2013

I suppose I'd better get back to it...

Hello again

Sorry I've been so quiet but my arm has been really painful! So now along with the POTS, depression & anxiety meds I'm now on a whole host of painkillers and being referred to physio. Still basically functioning with just my right hand, but quite impressed with what I can do - including baking a cake!

My appointment with my cardiologist is being postponed until I don't know when so just trying to get by day by day with the help of my lovely boyfriend and family.

I know I've said it before but I will improve the design of this blog (somehow) or I may get one of my more technical friends to do it!!!

I've not heard back regarding whether I need to attend an ATOS interview so that cloud is looming over me - trying to do just a 15 minute scheduled worry session as recommended by my therapist & most of the time I'm successful, but other times there is no way on Earth that you can stop thinking! 

One cloud that has been lifted is that I've resigned from my job. There was too much pressure from them to either come back too soon or face a capability meeting in which they'd have to dismiss me so I took my own option and resigned. Feel such a sense of relief for it. Not heard from them yet, but trying not to worry about that, my parents are kindly fielding all correspondence.

It is awful when you go into a career like HR in order to help colleagues as much as possible and be an intermediate between them and the business, but HR is more on the side of the business than ever as I'm sure people have noticed the term "HR Business Partner" is used more than ever and they are used as a strategic force. Much like a big map used in WWII pushing ships around with poles, that's what it felt like but doing it with people, regardless of their situation. The HR Manager I worked for had no idea about mental illness, a previous HR member had had one and I'm so appalled about what she said to her that I can't repeat it. The previous two occupants of my role were both driven away by her too. And they actually try to sell themselves as a company who cares! Anyway, rant over.

It is International Happiness Day and ever since I heard that it was going to be today I wondered why we need one day for that?  Why not do something to make people happy every day?

I hated singing at school, I hated hymns, I'm tone deaf and just didn't like being forced to sing about things I didn't believe in but this song has stuck with me:

Even when the darkest clouds are in the sky
You mustn't sigh and you mustn't cry
Spread a little happiness as you go by
Please try

What's the use of worrying and feeling blue
When days are long keep on smiling through
Spread a little happiness till dreams come true

Surely you'll be wise to make the best of every blues day
Don't you realize you'll find next Monday or next Tuesday
Your golden shoes day

Even when the darkest clouds are in the sky
You mustn't sigh and you mustn't cry
Spread a little happiness as you go by

I've got a creed for every need
So easy that it must succeed
I'll set it down for you to read
So please, take heed
Keep out the gloom
Let in the sun
That's my advice for everyone
It's only once we pass this way
So day by day

Even when the darkest clouds are in the sky
You mustn't sigh and you mustn't cry
Spread a little happiness as you go by
Please try

What's the use of worrying and feeling blue
When days are long keep on smiling through
Spread a little happiness till dreams come true

Surely you'll be wise to make the best of every blues day
Don't you realize you'll find next Monday or next Tuesday
Your golden shoes day

Even when the darkest clouds are in the sky
You mustn't sigh and you mustn't cry
Spread a little happiness as you go by

(whistling solo)

Surely you'll be wise to make the best of every blues day
Don't you realize you'll find next Monday or next Tuesday
Your golden shoes day

Even when the darkest clouds are in the sky
You mustn't sigh and you mustn't cry
Spread a little happiness as you go by

So despite my anxiety, fear of leaving the house, fear of meeting other people, etc I am determined to spread more happiness. I already smile at people, apologise (maybe too much), let people go in front of me in queues, try to offer support to anyone but I will up my game!

Hopefully my next post will be full of happiness and more plans on what I am going to do with my future.

Take care everybody. 

J

Wednesday 6 March 2013

Falling apart

Well blogging isn't easy one handed!

I woke up on Monday in agony whenever I moved my elbow I felt a shooting pain from my elbow to my fingers. Just another thing to add to the list. My arm is still in a lot of pain and I can't grip anything. Got painkillers and anti-inflammatories from my GP so I'm hoping these work soon. #one of the worst things is knowing I can't drive - just another part of my life stripped away. I know it's not forever but it is frustrating when I'm trying to work on the anxiety and depression symptoms when I'm struggling to do anything physically. I'm so tired I fell asleep at 8pm last night and still feel exhausted, mentally and physically.

I can't face reading, I'm just too tired.

Really praying it's better for the weekend so I can make my mum a cake for Mother's Day!!! 

J



Friday 1 March 2013

Self Harm Awareness Day - TW harm

As today is Self Harm Awareness Day I thought I would share my experiences.

I was aware of depression and self harm as a friend's sister was suffering badly and actually killed herself when we were 11 (her sister was 15) and at the time I couldn't understand how anyone could do that and thought I never would be able to.

I first started self harming when I was 16, I knew something was wrong with how I felt, I tried to talk to people but I was always known for always being happy, never complaining so no one really took me seriously. I don't really remember what made me do it the first time but I felt a horrible emptiness inside. I was disgusted with myself. I was worthless. I deserved to be in pain. I needed to feel something.

I would not advocate it to anyone but to me, at the time it helped. I needed to feel it, the initial cut, the hot feeling on my arm, the blood coming out and cooling it slightly. It calmed me down. It reassured me that I was causing myself pain. 

It was something I kept to myself for a year until it was no longer bearable in any way and I felt like I was so close to going further. I confided in a close friend and from there I began my journey into the world of mental healthcare. Obviously all the mental health care workers discouraged it, giving me suggestions as to use ice as this could give the same effect (it didn't). 

I could never cut myself in front of people and have been incredibly ashamed of it (although I don't think anyone should be) and hid it from everyone. My bf at Uni helped me by telling me if I had to do it to do it in front of him so he could keep an eye on me - I gave up for quite a while as I didn't want to let him down. There was also a particuarly horrific group therapy session I attended where the boy next to me cut himself in the session, this again made me stop for a while.

I continued to self harm on and off for the next 6 years or so, even after I felt "better" when things got stressful I remembered the release and rush I felt when I cut my arm. It had become an addiction. I kept my cuts clean, in the end it became purely a release mechanism rather than causing myself pain.

I became very good at hiding my cuts as most people do.

When my depression and anxiety reared its ugly head again last year I automatically went to cut, but I found it didn't provide the release I needed. I tried it a second time but again nothing. I was disappointed in a way that I couldn't get the release when I needed it and have struggled to find anything that helps me when I am incredibly anxious or down but I know I am the better for it.

There are so many more advances out there now though, if elefriends.org had existed back then or some of the other charities and places that have become more well known to me over the years maybe I would have chosen a different route.

I'm pleased that I can now talk about this openly and hope others soon can so that it can be a discussion held between two people as commonly as giving advice for preventing a cold.

I hope the day has raised awareness to more people and the Time to Talk campaign gets people to open up to help remove any stigma and let people know there are people out there to help.

J